Lovehatecarbs
Silver Member
Anyone trying to diet with this? Anyone managed to find the energy and resilience to exercise? I'm struggling.......
Joint Hypermobility Syndrome
- Thread starter Lovehatecarbs
- Start date
Lovehatecarbs
Silver Member
That sounds tough - chronic pain is exhausting, I'm struggling to sleep and there is no point in taking too much in the way of painkillers as they don't work so well on people with jhs anyway!!
toofatkat
Not such a fat kat now :)
My daughter has been diagnosed with Ehlers Danlos syndrome type 3 and jhs has now been recognised as being the same thing. I'm undiagnosed but I have all the pain as well as many joint problems. I've had sleep issues for over 10 years but just bought a new amazing mattress which I have to say has worked brilliantly. I avoid painkillers unless desperate. Exercising isn't my favourite thing to do I must admit. I do struggle with fatigue. Not a lot you can do I'm afraid. Good luck x
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Lovehatecarbs
Silver Member
My rheumatologist has been great, I too avoid painkillers but having a bit of help with sleep/stress. Joined a gym to do Pilates which is essential for bendy people and trying to get into self management zone but it's very hard - stress and fatigue so hard.
Hiya all its a daily struggle for us all, I pray for you all that you can get respite and more good than bad days.....my physio worked on my neck and shoulders but I was not feeling great CFS was kicking in then been laid up foe nearly two weeks but Im bit perkier at the mo...? xxx back to physio in a week
