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Thread: Joint Hypermobility Syndrome

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    Joint Hypermobility Syndrome

    Anyone trying to diet with this? Anyone managed to find the energy and resilience to exercise? I'm struggling.......

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    Yes I am just been diagnose suffer with cfs tinnitus chronic pain sleep oaralysis etc ......im off to physio Il post what happens its horrid isnt it x

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    Quote Originally Posted by chevvy53 View Post
    Yes I am just been diagnose suffer with cfs tinnitus chronic pain sleep oaralysis etc ......im off to physio Il post what happens its horrid isnt it x
    That sounds tough - chronic pain is exhausting, I'm struggling to sleep and there is no point in taking too much in the way of painkillers as they don't work so well on people with jhs anyway!!

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    Diet: low fat calorie counting with slimming world influences
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    My daughter has been diagnosed with Ehlers Danlos syndrome type 3 and jhs has now been recognised as being the same thing. I'm undiagnosed but I have all the pain as well as many joint problems. I've had sleep issues for over 10 years but just bought a new amazing mattress which I have to say has worked brilliantly. I avoid painkillers unless desperate. Exercising isn't my favourite thing to do I must admit. I do struggle with fatigue. Not a lot you can do I'm afraid. Good luck x

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    Quote Originally Posted by toofatkat View Post
    My daughter has been diagnosed with Ehlers Danlos syndrome type 3 and jhs has now been recognised as being the same thing. I'm undiagnosed but I have all the pain as well as many joint problems. I've had sleep issues for over 10 years but just bought a new amazing mattress which I have to say has worked brilliantly. I avoid painkillers unless desperate. Exercising isn't my favourite thing to do I must admit. I do struggle with fatigue. Not a lot you can do I'm afraid. Good luck x Sent from my iPhone using MiniMins
    My rheumatologist has been great, I too avoid painkillers but having a bit of help with sleep/stress. Joined a gym to do Pilates which is essential for bendy people and trying to get into self management zone but it's very hard - stress and fatigue so hard.

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    Hiya all its a daily struggle for us all, I pray for you all that you can get respite and more good than bad days.....my physio worked on my neck and shoulders but I was not feeling great CFS was kicking in then been laid up foe nearly two weeks but Im bit perkier at the mo...? xxx back to physio in a week





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