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Thread: Do you have PCOS?

  1. #316
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    (Hugs to you)


    I know exactly how you feel, I battled and battled with my gp for around 5 years, going back and forward to the surgery, having appointment after appointment before they would test me, I had inconclusive blood tests, scans ( external and internal ) and tried the pill, diet pills, diets everything every time I was told by my gp there was nothing wrong with me. Eventually I demanded to be referred, and to be honest i was let down by my local hospital, finally i used my private healthcare ( which I get through work).

    As a real supporter of the NHS I honestly feel that i have been let down, whether from my gp, my gp surgery or the specialist. I was referred to under the NHS, I was made to feel like a time waster, was told it was my fault I was overweight ( despite my efforts!!!) my spec's idea of treatment was to try the pill for 6 months, see if that helps.......??

    After being referred ( which I had to demand at my local go surgery) my specialist has been great, I've had scans, 2 laparoscopies as I not only have pcos, but I also have quite severe endometriosis and one of my ovaries had hanging cysts, the other one was stuck back to the wall of my ovary,,,,, had. Not claimed privately i would still be on the pill, hoping for my symptoms to get better.........which it wouldn't have, the combination of all these things, un treated could have resulted in infertility !!!!!

    If I were you, the best advice i can give is to research research research, tell THEM what YOU want, don't be fobbed off with useless suggestions, which will not help, if I can offer any advice whatsoever ( in my limited knowledge) please let me know.

    Xx

  2. #317
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    Quote Originally Posted by Janey1985 View Post
    Hi Girls!

    Wondering if anyone can help me! This is gonna sound really bad. I was diagnosed with PCOS in 2004 aged 18, and was basically told come back and see us when you want a baby.

    I am now 26 - I dont want a wee one at the moment - but have never been back to the doctors regarding it since but this year decided to take control of my weight as it was getting out of hand. I am now on track with loosing it by following a Low GI diet and my symptoms have been slightly better but I have textbook PCOS. Excess facial hair, no acne but the hair on my head falls out and I of course carrt extra weight round my tummy and more or less absent periods. Ive had a few this year to be fair which is much more than I have ever had.

    I am so scared to go to the Doctor about this. Definetly need to go I know but just wondering if anyone has ever felt the same.

    xxx
    Janey - you've done a great job losing weight already! and by low GI/GL too which is the best method for us cysters

    as you and I both know, it's quite usual with pcos to also feel low and lack confidence, so it's quite usual for us to doubt whether we should be bothering the GP, or whether they will be unable to help... generally GPs are much better informed these days and have a better idea of the serious health effects/risks with pcos so they're better by far than they used to be. It's their job to understand. The difficulty for GPs is that it's a complex syndrome rather than a specific illness, so they tend to end up treating according to which symptom someone's struggling with.. so it's worth thinking about what you're wanting the GP's help with.

    You'll get more answers from Home | Verity - PCOS Charity

    all the very best and keep posting your progress here.. we're all in this together and it's not easy for any of us, but we don't have to go through it all alone xxxx

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    I have it too! Suffered from irregular periods when very thin but have put on weight very easily, especially around stomach area. My symptoms have got worse the bigger I've got. The hair growth is the one I hate the most, plus my fear of not ever being able to have children! Hoping my weight loss will show improvements! x

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    I'm 22 and I've always had irregular periods... However I haven't had a period since May and I started to grow hair under my chin and stomach so about a month ago I went to my Doctor and he checked my blood but everything came back fine, he also referred me to the hospital for a scan which showed that I do infact have Polycystic ovaries... He explained that this is probably part of the reason why I find it hard to loose weight so he's now prescribed Orlistat (Xenical) to help kick start my diet.

    I realise that you can't treat PCSO's... The only thing that worries me is not being able to have children when I decide I'm ready....

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    I'm 26, and was diagnosed with PCOS about 2 and a half years ago. Similarly as others of you, my GP tried to fob me off saying "you don't look like you have it", but rather than just accepting that by looking at my face they could tell, I stuck to my guns, got tested, and would you know it, my suspicions were correct!

    Until this year however, I got no help with the diet. All I was told was you have to eat half as much as a normal dieter and exercise twice as much. This year I went back to the GP and told him how I do that, and I've followed WW etc, but still all that happens is I manage to maintain my weight, if I follow it strictly. This is when he told me about the Low GI plan. I followed it, and did manage to lose about 10lbs, but unfortunately, typical for me, I slipped and have struggled to get back to it. That slip was about 4 months ago now, which means I have also put on weight again.

    I really need to sort it and myself out. My problem is I spend a lot of time in my own company at home, which in itself is fine, but that's when I also eat a lot, snack on rubbish, and eat to excess. It's like if no one sees me then I'm not really eating it. Which is silly, because obviously I am eating it!

    We're all in the same boat, and I just hope with your support, I can get this sorted and I am here to support anyone else who wants or needs it.

    xx

  6. #321
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    Quote Originally Posted by FiFilePeu View Post
    I really need to sort it and myself out. My problem is I spend a lot of time in my own company at home, which in itself is fine, but that's when I also eat a lot, snack on rubbish, and eat to excess. It's like if no one sees me then I'm not really eating it. Which is silly, because obviously I am eating it!

    We're all in the same boat, and I just hope with your support, I can get this sorted and I am here to support anyone else who wants or needs it.

    xx

    Im exactly the same regarding the eating when no-one is around.... And I've also struggled on WeightWatchers and Slimming World... Have you ever tried Xenical? I'm currently in my second week of taking the tablet and I've lost 4 pounds. It may help you to kick start your diet again? xXx

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    Hiya, new here. Was diagnosed when 17, am now 35. Skewed hormones and cysts on ovaries seen on a scan. I don't want kids which is lucky cos I'm scheduled for ovaries being removed in 10 days. I had about 1 period a year for about 10 years as the pill made me have appalling mood swings so I didn't take it. Then my periods came back in my 30's and my body took rather a large exception to progesterone it'd not seen for years and migraines and all kinds of other horrid symptoms ensued. Am slightly curious as to whether my PCOS will get better or worse after having my ovaries out. Not sure what to expect at all!

  8. #323
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    Quote Originally Posted by LadyLozzers View Post
    I'm 22 and I've always had irregular periods... However I haven't had a period since May and I started to grow hair under my chin and stomach so about a month ago I went to my Doctor and he checked my blood but everything came back fine, he also referred me to the hospital for a scan which showed that I do infact have Polycystic ovaries... He explained that this is probably part of the reason why I find it hard to loose weight so he's now prescribed Orlistat (Xenical) to help kick start my diet.

    I realise that you can't treat PCSO's... The only thing that worries me is not being able to have children when I decide I'm ready....

    I'm also 22 and found out last year unexpectedly while suffering from Pancreatitis. My boyfriend and I know we want kids, and it was really upsetting for a while, not knowing whether or not we will be able without complications. I was basically told "If you don't want kids yet then just try to lose weight, come back when you do", which wasn't exactly helpful! Although it did help me to kick start my weight loss, and I'm doing okay. I've been following slimmm/celebrity slim and managed to lose just over 3 stone, then I hurt my back and couldn't move around much for a month, and I'm ashamed to say I spent most of that time comfort eating.
    The main problem was...it was painful walking to the bathroom, and while following the shakes weight loss plan you drink a lot of water and go to the bathroom a lot, I gave up following the shakes and managed to put on 11lbs. I'm now back onto my shakes and feeling good, but am still worried about the pcos.

    I had very irregular (if any) periods for years, but for the last 3 years or so they've been very regular, which the specialist told me was a good sign!

    But...the hair!!! I hate hate hate it. I try to keep on top of it, and my boyfriend said it doesn't bother him, but I do worry sometimes! I spoke to the specialist about the hair during a consultation, I'd done my research and asked him about Vaniqa, he said as it's expensive they try to only prescribe it to those who really need it but if I felt I needed it I could have it, and I didn't feel my hair growth was enough to warrant it back then, and really I suppose it's not, but man some days I want it, lol.

    What are your results of the Xenical like? I'm worried to try anything medical for weight loss because of the side effects.

  9. #324
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    I feel for all of you! I was diagnosed with PCOS at 16, I was 17 a few weeks later. I use to have spots on my face. I don't anymore. I put on lots of weight. I still have excess hair all over my body. My periods were normal before I started taking Dianette (the pill) for my facial hair and spots. During that time I was on my periods (or spotting) normally. I stopped taking Dianette after a year and a half of being on it. From stopping Dianette my periods were all messed up until July 2012. They have been normal since then

    I have been on Xenical (diet pill) for 3 days and the side effects are Diarrhea I will post how much weight I lose from taking Xenical, if I do lose any My doctor wants me to be on Xenical for a month and then go back to see her and if I have lost more than 5% of my body fat then I can continue using it for 3 months and if I lose more than 10% of my body fat in 3 months then I can use it for 12 months.
    Last edited by rosie1234 : 19th November, 2012 at 08:53 AM

  10. #325
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    After years of suspecting I have PCOS I was finally diagnosed this year. I always had fairly regular cycles but as I often pointed out I have been on contraseptive since I was 16-17 and I'm now 23. I have weight gain, excess hair (face, stomach, chest), mood swings and mild achy, you know, all the fun stuff! I'm not on metformin to help with the weight loss, dual for my skin and I have an appointment with a dermatologist to see about electrolysis. I'm determined to get things back on track.

  11. #326
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    I know this an old thread but am currently going through the hell of diagnosis. Am currently 18 and have suffered with irregular periods for over 3 years now. I have all the major symptoms: acne for as long I can remember, terrible hair growth, horrible mood swing and irregular periods. However, I've now been to see 4 separate doctors (currently moved cities as a student) and had a scan and number of different blood tests and have been told I have got PCOS, I haven't and 'It's too early to say' - which I don't understand since I've had symptoms for a significant time - and been shoved on the pill.

    When I continue to have issues with the pill, the just change me to a different one and brush off my other symptoms. However, am trying to loose weight (with WW) to try and see if they will listen and not put it down to me being overweight :/

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    I have PCOS too, was diagnosed when I was 14, I am now 22. I haven't been to the Hospital about it since probably I was 15.

    I did go to the doctors, about my weight and he got me seeing a dietician, which did not help at all! She tried telling me I was eating in secret...and I knew I was trying my hardest to do what she said! anyway I told her I didnt want her help anymore and left it at that, my main problems are the skin, excess hair, and the overweight problem, the weight problem is the worst, some people just do not understand it and it makes me upset

    I'm trying the cambridge diet at the moment, so we will see if that makes a difference!

  13. #328
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    The weight issue is something I struggle with - to be honest I hadn't even heard of PCOS until I went to the doctors for something unrelated. But know when I mention to others they see it as an excuse when it does cause issues for weight loss. I've followed the WW plan to the letter but my weight loss is way below what others of a similar weight are experiencing. Slow and steady will hopefully be my way

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    Quote Originally Posted by VicLouGray View Post
    The weight issue is something I struggle with - to be honest I hadn't even heard of PCOS until I went to the doctors for something unrelated. But know when I mention to others they see it as an excuse when it does cause issues for weight loss. I've followed the WW plan to the letter but my weight loss is way below what others of a similar weight are experiencing. Slow and steady will hopefully be my way
    My specialist told me us with pcos don't burn carbs as effectively as others so to avoid them and stick to lean proteins and green leafy veg. Works for me x

  15. #330
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    I also have PCOS and have had two periods in 18 months. Been ttc for 18 months too with no luck. Had scans Oct 2011 and told I 'might' have it, then a specialist told me I didn't. Had another scan December 2012 by the same person who did the first scan and she said she couldn't understand why they'd sent me back when she told them the first time I do have it. I don't suffer from the excess hair or spots but I so have thinning hair that falls out, oily skin, headaches. I've lost four stone and that still hasn't helped with my periods, although I do need to lose another three stone. I often get pains in my ovarian area but the same consultant who told me I didn't have it told me this was due to constipation!! I've got an appointment with a fertility specialist next Thursday so hoping they make me a happy Sarah!!!

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