I am recovering from PCOS

Discussion in 'PCOS' started by Alexandrite, 28 July 2011 Social URL.

  1. Alexandrite

    Alexandrite Member

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    I typed a huge post and it logged me out!!!!!! :rolleyes:

    Anyway, I have regulated for 4 months in a row now, all naturally without drugs.
     
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  3. TobeaSkinnyMe

    TobeaSkinnyMe Full Member

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    hi alex

    how did u regulate?
     
  4. Alexandrite

    Alexandrite Member

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    Sorry, I typed a well long post and it timed me out!! Here I go again :rolleyes:

    BACKGROUND PCOS
    - Im 33 and started my periods at 10 :sigh:
    - I was regular as clockwork up until 16
    - Drs assumed it was exam stress and my dad passing away that effected my cycle
    - I have always been overweight, and being Indian hairyness is a must :rolleyes:

    DIANGOSIS:
    - When I was 17 my periods were still irregular about every 3-4months
    - They were extremely heavy and painful
    - They were also clotting
    - When i was nearly 18, I collapsed whilst on a period and was rushed to hosipital, where they removed a cyst on my ovary
    - My GP then saw me when I was released and informed me I had Stein-Levenet Syndrome (former name of PCOS)
    - He was honest and said little was known about the illness
    - He gave me dianette

    DIANETTE
    - I started taking Dianette just after my 18th birthday, seen by me at the time as the wonder drug
    - My periods regulated and were fast/pain free
    - By the time I was 20, 2 years on dianette my face and scalp were falling apart.
    - The Dr said it was the dianette, used to treat acne as I didnt have any, it was drying my skin and he took me off
    - He also said he wanted to see if I would now regulate by myself without the pill
    - The first month was fine, a bit heavier but I came on. However, the second period didnt come for over 4 months
    - I was in my final year at uni, really busy and not near my GP that I ignored it. My periods came about 3-4months apart and I just got used to it.
    - Then when I was 24, I collapsed again

    Second Dianogsis
    - My GP had since retired, I was no longer registered with a GP
    - After collapsing I was taken to hospital and the Drs there referred me to Gyne and I went through tests only to be informed i had PCOS. I didnt know it by this name and assumed I had something new.
    - i was given medication and when I collected it, I realised it was another contraception, not dianette. So I took it and everything went back to normal, although not so much dry skin
    - I remained on the pill for a further 2 years, now engaged I wanted to try for a baby and took myself off
    - No one informed me that PCOS had an effect on fertility.
    - My periods went back to irregular, I was convinced I was pregnant until I had a period 5months later, very painful i was bed bound and given codine.

    Mood Swings/Insomina
    - My relationship broke down about a year later, I was very moody but he was a twit anyway
    - I concerntrated on my career and the lack of periods were a help as I didnt realise until I came on, but my manager was good and I worked from home
    - I would sleep 3-4hrs a day and lived a fast paced life.

    Nov 2010
    - My periods by this stage were 8-10months apart
    - When they did come, they would last 2-3weeks. Heavy clotting and unbareable pain
    - I collapsed again, this time whilst away on business in Manchester and the Dr at the hosiptal was really good about informing me that PCOS research has come along way and different treatments are available.
    - During Christmas I got Swine Flu, so missed my Drs appointment about PCOS

    Jan 2011
    - I went to my new GP, she explained a few things, most went over my head about insulin etc.
    - I was sent for a full set of tests (Ultrasound; Blood Sugar etc)
    - About a month later, my GP said I will be prescribed Metformin
    - I was aware of this drug as my brother is diabetic. At the hospital he came with me and read my blood sugar results, very shocked that I was normal but yet they were giving me metformin
    - He was equally shocked that I was not given any dietry advice with Metformin or a blood sugar monitor. For him taking Metformin was calculated
    - I took it for a week and felt I was dying, the headaches; neusea; tiredness was unbareable. I put on weight, as I was just eating to get energy.

    March 2011
    - By this stage I had enough, my GP not happy I refused Metformin and the pill she almost said there was nothing else available.
    - So I did my own research...

    What I found out:
    - People with PCOS have insulin resistence
    - Energy is built up and stored as fat, the pancreas is almost defunked.
    - Its like diabetis and can lead to it, but it isnt.
    - Metformin has never been tested for use on PCOS and the side-affects are not known on PCOS
    - The pill can regulate a period by pumping the body with eastrogen to fight the male hormones developing, it doesnt beat them... it just ups the numbers to create a balance.
    - Once you stop the pill, the naturally occuring male hormones are stronger than the amount of female hormones you are producing
    - The male hormones are surviving/building upon the excess blood sugar which is not high, just not being digested.
    - As our pancreas cant work properly, our intake of fast releasing energy needs to be reduced. We may be eating the right amount of energy, but its going in too fast and our bodies are speeding it into fat.
    - The best analogy is dog walking, if your dog is walking faster than you, its taking you for a walk. The pace is too fast, you either need to walk faster (Which we cant as our pancreas is slow) or get a slower dog.
    - What is causing fast energy... refined carbs.

    PCOS - Is an allergy to refined carbs

    I now diagnoised myself with a food allergy and just like those with a nut allergy; lactose allergy I had to stop eating refined carbs.

    From mid March I did just that, I cut out:
    - White Bread
    - White Pasta
    - Fizzy Soft Drinks (diet occassionally)
    - Sweets/Chocolates
    - Potato

    This was extremely hard, Pizza/Pasta were my fave!! :cry:

    I did this for 3 weeks, and on the 9th April I came on. It was painful/heavy but I was on. I was consuming about 80g of good carbs (brown bread/fruit etc) and was coping, although hard when you want chocolate!!

    I continued until the 9th May, to my shock I came on... exactly a month after. I have never had a 2 month in a row natural period in my adult life!! This was motivating and it wasnt as heavy/painful but was long

    I decided to weigh myself, I was 15st 6 :cry:that was depressing. Not sure what I was when I started decarbing. I stuck to the anti allergy foods, a few slips (a macdonalds and a huge chocolate sundae) but in the main stuck to 50-80gs of carbs a day.

    9th June... I came on again, now I was excited as I was keeping a log in my iphone and could see a pattern. I had dropped into the 14st zone (just about)

    9th July... I didnt come on, I was gutted but I knew my junk food diet on holiday in Dublin was to blame. I returned back on the 5th and went down to 30g-50g of carbs a day. My period came on the 13th July. That was 4months in a row.

    Today, I am in the 13stone bracket and awaiting my next period (a happy period). The period on the 13th was really light, I was able to go out clubbing on the same day and sleep all night without needing to change my pad. It lasted 4 days and it was a walk in the park.

    I have started to take suppliments. I been researching into things like Chasteberry/Bitter Melon which naturally reduce blood sugar and upping my Vitamin B/D which is deficient in PCOS suffers.

    Thanks to my brother, I just found out about sugar free vimto with sparkling mineral water... which has totally stopped me thinking about coke!

    I go for a 2-3 mile walk a day (1mile of that is walking around Primark!!) and apart from a few slips been doing ok.

    I am not on a deit... I am allergic to refined carbs. :p
     
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  5. Elena

    Elena Full Member

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    Thanks for sharing! Can I just ask (as a fellow indian ;)) do you still eat indian food? Roti etc? And would it be too nosey to ask what you eat on a typical day/week? :)
     
  6. TobeaSkinnyMe

    TobeaSkinnyMe Full Member

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    HI Alex


    Many thanks for the long post - it has helped me and it will many others also.

    I crave carbs... my dp calls me starch woman!

    I have started Lipotrim today (no food for at least 3 months to get weight down)

    When I refeed, I will try and cut out as many carbs as I can to keep my weight and pcos under control.

    thanks again!!!!
     
  7. Alexandrite

    Alexandrite Member

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    Good luck on lipotrim, I lasted 8hrs before i had to eat. Upmost respect to people who have the will power
     
  8. Alexandrite

    Alexandrite Member

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    I cant actually cook so what I eat isnt authentic!! I been to an indian a few times and just cut out the naan/rice... You do feel stupid eating a curry by itself!! The last time I went, I did have a wholemeal chapati.

    I guess i try not to punish myself ... so having the odd samosa or chapati felt ok.. I guess I also know that a nan bread/white rice is a lot of refined carbs which make me sick.

    I have had samosa/bhaji/pakora the amount of carbs is minor if i eat one or two.

    When I go home, cos my brother is diabetic I just eat what he eats... saag; muter paneer. I stay away from dhal; rice; gobi aloo etc.

    Quick desi tip... fried paneer cut like strips of chips, fool the psychi into believing you are having chips/sides and virtually no carbs.
     
  9. Elena

    Elena Full Member

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    Brill! Thanks for the tips. Btw I'm glad to have a reason to eat more paneer - yummm :clap::clap:
     
  10. vonpeeky

    vonpeeky Full Member

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    i love this post! thank you for sharing! i love stories about how people have gone and made changes themselves, and take control of their own situation! i think too many with pcos like to blame everyone around them drs consultants and surgeons (i was one of them) for not giving them the pill that will make them better! and i think this leads to alot of excuses. i know i sound awful here but after 4 surgeries and alot of time waisted on drugs and hospitals i realise i am the only one that can make things change!
    well done! and again fab post thank you!!
     
  11. Blissam

    Blissam Member

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    Thank you for sharing this. I was diagnosed with PCSO 6 years ago. I never got any information on it and was prescribed Diannette to regulate eveything. After 5 years I've had enough and stopped taking it. My doctor even questioned why I was on it until he read his notes and realised it was him who had prescribed it me.

    Anyway I also cut out white bread and found that as my periods got closer I was less irritable and moody. I was told I would struggle to conceive due to PCSO (not good when you find out you have it 3 weeks after loosing a baby). Confidence blown and idiot boyfriend I piled on weight.

    And here I am.

    Thanks for the info and helpful post:)
     
  12. Princess-Jader

    Princess-Jader Full Member

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    Thank you so much for this super helpful post. I have not been diagnosed/been to docs about it but I do believe I have PCOS. I am pretty convinced now because although I've never had problems with regular cycles, I have excess annoying hair and gained weight dramatically when periods started. Basically, I started new pill 2 years ago, when doing this my periods stopped completely and was told this was normal on this pill etc so didn't bother me. However, I joined a weight loss group which was a high protein and low carb diet and I had a period randomly after a couple of weeks on the diet. I think that's what has made me convinced I have it because your post saying about carbs etc. So I have decided I am going to go back to high protein, low carb diet.
     
  13. rach3l-x

    rach3l-x Member

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    What a brill post, I'm going to read through that thoroughly tonight xxxx
     
  14. Lith

    Lith Member

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    Great post, confirming pretty much every bit of serious research I've ever come accross about PCOS (although as a sufferer of various allergies I wouldn't class this one as an allergy...more an intolerance). Whilst it's never nice to go through what PCOS puts you through, nor see someone else go through it, it's good to still see your suspicions validated (if that makes sense!)

    I'm currently trying to incorporate more whole, unrefined foods into my diet and phase out refined and processed ones. It's a gradual process, however I would say I've got to the point where I'm 50/50 unrefined/refined whilst before I would have been 20/80 unrefined/refined. I've already seen a difference thanks to this, my weight is finally starting to decrease (like you say, I was eating the correct number of calories but was still not loosing). I've known all along that this was the "correct" way...the overall healthy diet to stick to...I only wish I'd stuck to it before I got to this point!
     
  15. Aymz

    Aymz Silver Member

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    Post edited and new thread started.
     
    Last edited: 25 September 2011
  16. Chunky_Monkey

    Chunky_Monkey Full Member

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    Your 10 minute post has just given me more info on PCOS than the doctors have in 2 years. I am definately going to try this. I am going through rather intense fertility testing at the moment and will be for the next 3 months so I think I will make it my new years resolution to get this plan into full action.

    Thank you so so much, I am literally willing to try whatever there is to regulate my periods. xxx
     
  17. lsf666

    lsf666 Watch this space...

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    Thank you for posting all this info. I saw your thread title by accident while I strayed away from the SW threads and I'm glad I did :)

    I was diagnosed with PCOS after a referral to a gyne (irregular and painful periods) but nothing was explained. After a blood test I had high levels of prolactin so was referred away from gyne and to an endocrinologist. I was prescribed cabergaline which made me regular and I still take.

    As others have said, no info about fertility or insulin was given (perhaps due to them finding something else) and the carb intolerance is an real eye opener for me.

    I'm on SW and lose way more when on a red day (reduced carbs) than a green day (reduced proteins). And now I can see why :)

    Again - thanks x

    Might have a nose around the PCOS threads now I've found them :)

    Sent from my iPhone using MiniMins
     
  18. annamarie

    annamarie Member

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    Excellent post.

    I was diagnosed with PCOS at 20 and was told that I couldnt concieve naturally, I was prescribed Metformin for a few months but apart from the headaches it didnt really make much difference.

    I was then offered IVF. I had 2 failed attepts at this and decided to give my body a break.

    Now at 28 i have been prescribed Xenical to help me to loose weight in order to have another ivf cycle.

    I am definatley going to look at having pcos as an allergy to refined carbs. I havent had a period since July 6th so I am willing to give anything a try.

    Thanks again

    Annamarie.
     
  19. Foxydebs

    Foxydebs New Member

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    Alexandrite - Metformin has been tested on people with PCOS, I have PCOS and was part of a medical study done by a gynae professor at jessops hospital in sheffield.

    I was also involved in a trial for the use of orlistat in women who have PCOS and are overweight.
     
  20. ah1993

    ah1993 Member

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    If you have PCOS does that mean you can never conceive naturally?
     
  21. sarah_lou1981

    sarah_lou1981 Not gonna be a fat mamma!

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    Not for everyone. I was told I might never conceive naturally as I don't ovulate, both ovaries are full of cysts and I also have endometriosis. After an exploratory op last March after ttc for two years I finally got pregnant and my little boy is five months old tomorrow.
     
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