SW and illness

[cupcakedaisy]

Hi everyone,

Hope you got some sleep and are ready for the day ahead.

I thought it might be a good idea if we could post any suggestions for SW friendly meals that we have tried that are easy to prepare and that we are possiblly able to double up on to put an extra portion in the freezer. I thought its helpful to write down at least one or recipes that we can manage to do, and it would make us feel more confident that we can manage at least one meal that helps us keep on plan. (does this make sense?!)

Im going for my sleep now, but will post later with some ideas and hopefully catch up with you are all doing.
Mel x

hi mel,didnt you sleep last nite ?i got a good sleep and am just about to head out to chesterfield- i havent been there for months,it involves a train and a lot of walking.
i ve got 2 nice + quick soup recipes...
get some rest .
daisy x

 

[DustQueen]

Hey guys I've just woken up :S
Good idea about the food it depends which bits you can cope with doing, quite a lot of the time I sit on the sofa with my chopping board and chop which isn't so bad if I do it slowly enough, what bits do you guys find doable?

 

[DustQueen]

I was thinking of starting a thread in the teams section something like SW and ME/CFS so that people could find us if they had the same problems, would also be somewhere to chat? What do you think?

 

[cupcakedaisy]

hi carly and mel,
well i went out yesterday,had a great day,bought some things but it was manageable.got home at teatime,got in bed about 6 pm and just woke up now... 5 am.
food yesterday was shocking.2 ryvita with a tsp marg and a banana for breakfast,a frappucino and 6 thorntons chocolates.feeling slightly ashamed.
going to make a veg lasagne with cornflower in the cheese sauce and lots of greens today.
carly ,i think you should try reiki,i found a very nurturing feeling,it seemed to be what i needed at the time,i felt rock bottom.i cant imagine how you must feel getting m.e at 18 was awful.
mel how are you doing today ? i should imagine i'll be awake most of today but going to do some college work and not on laptop too much.
daisy x x

 

[cupcakedaisy]

carly,
yes starting a thread in the teams section sounds better.
as for chopping,i cook very occasionally it seems.i buy packets of salad and have jacket potato and cheese all the time.
youve done well to get to phd level considering youve been ill since 18.has this relapse been two years now ?
daisyx

 

[DustQueen]

hi carly and mel,
well i went out yesterday,had a great day,bought some things but it was manageable.got home at teatime,got in bed about 6 pm and just woke up now... 5 am.
food yesterday was shocking.2 ryvita with a tsp marg and a banana for breakfast,a frappucino and 6 thorntons chocolates.feeling slightly ashamed.
going to make a veg lasagne with cornflower in the cheese sauce and lots of greens today.
carly ,i think you should try reiki,i found a very nurturing feeling,it seemed to be what i needed at the time,i felt rock bottom.i cant imagine how you must feel getting m.e at 18 was awful.
mel how are you doing today ? i should imagine i'll be awake most of today but going to do some college work and not on laptop too much.
daisy x x

Oh glad you had a good day
5am? I was just going to bed then, I'm normally asleep still now hoping it'll be ok later and I won't crash
Oh gosh be careful of eating so little x I know it's hard x
Oooo lasagne sounds delish!
I will Daisy thanks I'll see if I can find someone locally who does it

 

[DustQueen]

carly,
yes starting a thread in the teams section sounds better.
as for chopping,i cook very occasionally it seems.i buy packets of salad and have jacket potato and cheese all the time.
youve done well to get to phd level considering youve been ill since 18.has this relapse been two years now ?
daisyx

I started a thread in the team section
Mmmmm really fancy a cheese jacket now
Yeah it'll be two years in October since I was signed off :S

 

[GoForIt]

Hi all, it's been a long time. Here's the scoop!

So I started SW earlier this year, and was heartbroken when week after week I lost nothing (or lost and gained it back the next week) despite sticking to the plan to the letter, yet other people were losing in spite of their slip-ups... which I was a little jealous about to say the least! :cry:

Then I went to see an endocrinology and M.E. specialist privately. He told me in no uncertain terms that I wouldn't lose weight in 'my condition'. This wasn't meant pessimistically, as he had already told me how he could help me, and he simply meant to stop adding stress about my weight into the mix of things. So in short I stopped going to group because it was so much effort to go and get weighed and be told what I should be doing... (I never felt like I was believed that I was sticking to the plan.)

Fast-forward to now, and I have been taking what the specialist recommended for some time, and I want to try losing weight again now my thyroid should be back on track. I don't know whether to go back to SW or try something else. How is everyone else getting on with the SW plan?

Dustqueen, my husband finished his Ph.D in particle physics about two years ago. I can't imagine managing a Ph.D while battling M.E./C.F.S. I tip my cap, ma'am!

 

[DustQueen]

Hi all, it's been a long time. Here's the scoop!

So I started SW earlier this year, and was heartbroken when week after week I lost nothing (or lost and gained it back the next week) despite sticking to the plan to the letter, yet other people were losing in spite of their slip-ups... which I was a little jealous about to say the least! :cry:

Then I went to see an endocrinology and M.E. specialist privately. He told me in no uncertain terms that I wouldn't lose weight in 'my condition'. This wasn't meant pessimistically, as he had already told me how he could help me, and he simply meant to stop adding stress about my weight into the mix of things. So in short I stopped going to group because it was so much effort to go and get weighed and be told what I should be doing... (I never felt like I was believed that I was sticking to the plan.)

Fast-forward to now, and I have been taking what the specialist recommended for some time, and I want to try losing weight again now my thyroid should be back on track. I don't know whether to go back to SW or try something else. How is everyone else getting on with the SW plan?

Dustqueen, my husband finished his Ph.D in particle physics about two years ago. I can't imagine managing a Ph.D while battling M.E./C.F.S. I tip my cap, ma'am!

Hey GoForIt
I've found sw by far the best diet when it comes to my ME I've done loads including a vlcd god that made me ill and ww where I ended up not eating all day and having pizza for tea :S not healthy!
Well I'm not managing at all at the moment I've been signed off for nearly two years :S but thanks
I say come back to sw and join our sw with ME team

 

[Blaze]

*waves to everyone*

I posted a few months ago and I'm just finding my way back again. I stopped and started SW so many times during my treatment, but I just wasn't in the right place mentally. I've finished my chemo and radiotherapy and I am very very slowly starting to recover from the effects of treatment. My signature has been updated with my latest start date and weight info.

I have what is termed 'cancer-related fatigue' and I have symptoms similar to those with M.E. Regular exercise, other than walking, is impossible for me. I am trying to build up to doing more and this week has seen a real improvement in what I can do. I'm even hoping to be able to go swimming next week (I have tissue damage from radiotherapy which has given me slightly restricted movement in my arm and it's painful to stretch) but I know I'll be completely exhausted for days afterwards if I do. It's a bittersweet thing - being able to swim again as I no longer have a PICC line in my arm (tube thingy stuck in a vein to administer drugs) but then having to deal with fatigue. Bah.

Anyway, enough moaning from me. I'm really enjoying sticking to plan and feeling in control again.

 

[GoForIt]

Hi Blaze,

I admire your dedication. Just take it steady with increasing your activity. I don't have a clue if the cancer-related fatigue includes post-exertional malaise (payback) but regardless, please be gentle to yourself!

 

[Blaze]

For me, it does. I've noticed if I do too much, I get payback two days later! Whether that's the same for everyone, I don't know.

I'm dedicated to losing weight because I'm fed up of feeling fat and horrible and I want to look nice again. Them's the superficial reasons. I'm mainly doing it because if I can achieve and maintain a healthy weight, I drastically decrease the risk of reoccurance. I like life, I want lots of it!

 

[DustQueen]

*waves to everyone*

I posted a few months ago and I'm just finding my way back again. I stopped and started SW so many times during my treatment, but I just wasn't in the right place mentally. I've finished my chemo and radiotherapy and I am very very slowly starting to recover from the effects of treatment. My signature has been updated with my latest start date and weight info.

I have what is termed 'cancer-related fatigue' and I have symptoms similar to those with M.E. Regular exercise, other than walking, is impossible for me. I am trying to build up to doing more and this week has seen a real improvement in what I can do. I'm even hoping to be able to go swimming next week (I have tissue damage from radiotherapy which has given me slightly restricted movement in my arm and it's painful to stretch) but I know I'll be completely exhausted for days afterwards if I do. It's a bittersweet thing - being able to swim again as I no longer have a PICC line in my arm (tube thingy stuck in a vein to administer drugs) but then having to deal with fatigue. Bah.

Anyway, enough moaning from me. I'm really enjoying sticking to plan and feeling in control again.

Hey Blaze moan away darling well done on getting back on track, I have ME and my mother was diagnosed with breast cancer last year and she completed chemo and radio just before Christmas and yes her fatigue is very similar to my ME, but thankfully not permanent did you have the PICC for chemo then? Bet you're glad it's out

 

[Blaze]

I had two PICCs for chemo - my first had to be removed because I had a horrendous reaction to the dressings, but they still couldn't cannulate me so I had another put in after my skin healed a bit. I actually pulled out the second one on my second to last chemo as the nurses refused to remove it and I couldn't bear the itching from my skin anymore, so when no-one was looking I gave it a teeny tiny tug... And oops, it went from 7cm (useable) to 8cm out of my arm (not useable) so they had to take it out, mwahahahaha. I was the best patient, I'm sure you can tell!

How is your mum doing now?

 

[DustQueen]

I had two PICCs for chemo - my first had to be removed because I had a horrendous reaction to the dressings, but they still couldn't cannulate me so I had another put in after my skin healed a bit. I actually pulled out the second one on my second to last chemo as the nurses refused to remove it and I couldn't bear the itching from my skin anymore, so when no-one was looking I gave it a teeny tiny tug... And oops, it went from 7cm (useable) to 8cm out of my arm (not useable) so they had to take it out, mwahahahaha. I was the best patient, I'm sure you can tell!

How is your mum doing now?

Lmao that's hilarious, yeah they have so much trouble with mum's veins that they kept telling her she had to have one but she's stubborn too lol so she's just going into hospital so the chemo nurses can do her IVs now, as she's having herceptin at the moment, bless her the tablets and herceptin are giving her pains in her bones etc and her feet swell etc but she's doing well we're all going to Jamaica in jan to celebrate the end of her herceptin

 

[Blaze]

Aw, that sounds brilliant! I was lucky enough to not need herceptin, I have tamoxifen tablets to take for 5 years, but I still haven't celebrated the end of my treatment. I think I might get a new tattoo.