Joint Hypermobility Syndrome

Discussion in 'Nutrition, Health & Beauty' started by Lovehatecarbs, 13 June 2014 Social URL.

  1. Lovehatecarbs

    Lovehatecarbs Silver Member

    Anyone trying to diet with this? Anyone managed to find the energy and resilience to exercise? I'm struggling.......
     
  2. Avatar

    MiniMins.com Matched Content

    Register a free account with MiniMins and join in the conversation!
  3. chevvy53

    chevvy53 Member

    Yes I am just been diagnose suffer with cfs tinnitus chronic pain sleep oaralysis etc ......im off to physio Il post what happens its horrid isnt it x
     
  4. Lovehatecarbs

    Lovehatecarbs Silver Member

    That sounds tough - chronic pain is exhausting, I'm struggling to sleep and there is no point in taking too much in the way of painkillers as they don't work so well on people with jhs anyway!!
     
  5. toofatkat

    toofatkat Not such a fat kat now :)

    Start Weight:
    19st1.5lb
    Current Weight:
    13st5lb
    Goal Weight:
    11st7lb
    Lost(%):
    5st10.5lb(30.09%)
    Diet:
    low fat calorie counting with slimming world influences
    My daughter has been diagnosed with Ehlers Danlos syndrome type 3 and jhs has now been recognised as being the same thing. I'm undiagnosed but I have all the pain as well as many joint problems. I've had sleep issues for over 10 years but just bought a new amazing mattress which I have to say has worked brilliantly. I avoid painkillers unless desperate. Exercising isn't my favourite thing to do I must admit. I do struggle with fatigue. Not a lot you can do I'm afraid. Good luck x

    Sent from my iPhone using MiniMins
     
  6. Lovehatecarbs

    Lovehatecarbs Silver Member

    My rheumatologist has been great, I too avoid painkillers but having a bit of help with sleep/stress. Joined a gym to do Pilates which is essential for bendy people and trying to get into self management zone but it's very hard - stress and fatigue so hard.
     
  7. chevvy53

    chevvy53 Member

    Hiya all its a daily struggle for us all, I pray for you all that you can get respite and more good than bad days.....my physio worked on my neck and shoulders but I was not feeling great CFS was kicking in then been laid up foe nearly two weeks but Im bit perkier at the mo...? xxx back to physio in a week
     

Share This Page