Katie's World X
Gold Member
Right all if you could make 1 wish and it actually came true what would you wish for ?
I'm having a down day today feeling frustrated...
I have a 7 almost 8 year old son who had difficulties in learning,understanding and is quite delayed for his age he has poor mobility and uses a k walker (walking frame)
And has a wheelchair which he has come so dependent on :-(
He has a metabolic condition on his brain and the doctors are convinced its a mitochrondrial
Disorder there are over 200 types that have only been discovered and they do not know which one my son has.
We have had lots of tests
Lumber puncture twice
Skin tissue tests
And bone tissue tests
He is on medication 4 times a day :-(
He can't sleep a full night due to night terrors and muscle spasms in his legs he has never had a full nights sleep I really don't know how he gets through his day at school but he does and loves school.
He is a happy child and is unaware he is any different to other children I wouldn't swap my gorgeous boy for the world !!!
If I could have one wish I'd wish it would be....
For my son to carry on being happy and one day we will know exactly what the condition he has so we can learn more about it and help him the very best we can XxX
What would your wish be ? XxX
I'm having a down day today feeling frustrated...
I have a 7 almost 8 year old son who had difficulties in learning,understanding and is quite delayed for his age he has poor mobility and uses a k walker (walking frame)
And has a wheelchair which he has come so dependent on :-(
He has a metabolic condition on his brain and the doctors are convinced its a mitochrondrial
Disorder there are over 200 types that have only been discovered and they do not know which one my son has.
We have had lots of tests
Lumber puncture twice
Skin tissue tests
And bone tissue tests
He is on medication 4 times a day :-(
He can't sleep a full night due to night terrors and muscle spasms in his legs he has never had a full nights sleep I really don't know how he gets through his day at school but he does and loves school.
He is a happy child and is unaware he is any different to other children I wouldn't swap my gorgeous boy for the world !!!
If I could have one wish I'd wish it would be....
For my son to carry on being happy and one day we will know exactly what the condition he has so we can learn more about it and help him the very best we can XxX
What would your wish be ? XxX