Saz is Sophie your little girl? I have just looked at her website - you are all very brave - Sometimes something happens and bang your life gets into perspective. Bless you.
Yes Ameythist Sophie is my beautiful little girl. She is my main reason for doing this. The dr's have told me that she may not live past her late teens, so I have to make each day count. Although thats easyer said then done at times. Thankyou for taking a look though.
xx
Hello Saz
I've just looked at your website about Sophie and her condition. i hadn't heard of it before. It's very moving to see a little girl having to cope so bravely with the limitations it puts on her life.
I really admire you and the rest of your family for giving her the best possible memories.
Good luck to you all for the future.
Hi Slendablenda Sophie condition is so rare that there is no trails looking for a cure or treatment. She is a fantastic little lady. Unfortunatly she doesnt get all equipment and service that would make her life easyer and more comfortable so I started the website to raise awerness of her condition and to try raise funds for the specailist equipment she so desperatly needs.
Good luck for your weigh in Huseyin xx Thankyou for you message. Dont really see myself as a wonderful person, just desperate to keep my little girl. I think I do her website so I have something to do as I not sure how to breath, if I went over and over what the future has planed for her.
xx