well todays shaping up to be a crappy day
hopped on the scales, they say im somewhere between 18st 2lb and 18st 7lb
so im either losing nothing on exante or worse im gaining. im sticking to it, im drinking more than enough water and yet nothings changing
then i drove over to the hospital for an appointment for kaya. it was ENT review after the surgery she had in march. was expecting them to say shes fine and to discharge her. insted they told me the subglottic stenosis isnt cured just the stretching of her airways improved it temporarily. so she will have to be put under and bronchoscoped every year so they can remove more scar tissue and stretch it again and then do a more perminant operation when shes a teen. im sick of having to pin my baby down while they knock her out, i cant handle the stress, i get chest pains from the anxiety in the build up to them doing anything these days.
first he decided he would see her in a year, then he changed it to 9 months and now he wants to see her in 6 months, sooner if she gets anymore breathless. hard thou hes seeing it as the fact she cant keep up with toddlers let alone her peers but how can we tell whats causing what? is it caused by her cerebral palsy, her lung disease or her narrowed airways, who knows anymore
then when i got outside i was pounced on by the parking nazi
i had parked in one of the bays infront of the hospital, she started shouting that just because i have a disabled badge doesnt mean i can park there, that the spaces were for patients only, she wouldnt even listen when i tried to tell her we had been in the hospital for an appointment, i gave up in the end, got madam in the car who i had been carrying since i hadnt taken her wheelchair in with us and drove off. if the council want to send me a ticket so be it, they can take me to court for the money where i would be only too delighted to let the judge see our appointment letter
